Dear Fred,


Dear Fred,Lux Standart

I ran across this passage recently and I felt that it could easily apply to you and your life:

“This is the true joy of life, the being used up for a purpose recognized by yourself as a mighty one; being a force of nature instead of a feverish, selfish, little clod of ailments and grievances, complaining that the world will not devote itself to making you happy.

I am of the opinion that my life belongs to the community, and as long as I live, it is my privilege to do for it whatever I can. I want to be thoroughly used up when I die, for the
harder I work the more I live. Life is no brief candle to me. It is a sort of splendid torch which I have got hold of for a moment, and I want to make it burn as brightly as possible before handing it on to future generations.”
George Bernard Shaw

Keep up the good effort, Fred. I think of you –

Fletcher Manley

June 7 Prognosis


I had my medical evaluation yesterday and the deterioration is slow. I have lost strength in my legs but all other body functions are normal and my upper body is strong and above average. It is advised that I do not drive anymore and I am working on getting a special van with hand controls and an electric wheel chair

June 12 will be 6 months since the diagnosis and it looks as though I will make it past that milestone. My next evaluation is in 3 months and the goal is to maintain weight (can you say Haagen Das ice cream ?)

I have no idea on what to do to slow down the deterioration but I am doing acupuncture for energy and centering of my chi as well as chiropractic and massage therapy for general well being.

I will be entering clinical trails starting in July unfortunately there is a 50% chance that I will be taking a placebo instead of the real thing. There is no way of getting around that issue.

I am currently partnering with the ALS Association in the fight against Lou Gehrig’s Disease. Although I am limited it my ability to move around, it is not stopping me from planning on my next adventure to Central America and countries # 82-83-84-& 85.