Dear Fred,Lux Standart
I ran across this passage recently and I felt that it could easily apply to you and your life:
“This is the true joy of life, the being used up for a purpose recognized by yourself as a mighty one; being a force of nature instead of a feverish, selfish, little clod of ailments and grievances, complaining that the world will not devote itself to making you happy.
I am of the opinion that my life belongs to the community, and as long as I live, it is my privilege to do for it whatever I can. I want to be thoroughly used up when I die, for the
harder I work the more I live. Life is no brief candle to me. It is a sort of splendid torch which I have got hold of for a moment, and I want to make it burn as brightly as possible before handing it on to future generations.”
George Bernard Shaw
Keep up the good effort, Fred. I think of you –
I was warned ahead of time that this trip to Central America was not for people in wheel chairs. After much wheedling I managed to convince Overseas Adventure Travel to allow me to go. I was also given notice that if I could not keep up I would have to …
Hello friends!rpk-tramplin Over the last few months, I’ve begun work with Portland writer Phil Favorite on a memoir and inspirational book chronicling my life, loves, travels and adventures over the past 70 years. The book also will tell the story of the final years living with ALS and my mission …
Francis received this note from his neurologist friend, in response to his post ‘Moments of Being.‘ Dear Francis, I reread your beautiful and touching piece about Fred and Sylvia just now, in that very tranquil time of night, when all are asleep and when only the voice of Nemette used …
I had my medical evaluation yesterday and the deterioration is slow. I have lost strength in my legs but all other body functions are normal and my upper body is strong and above average. It is advised that I do not drive anymore and I am working on getting a special van with hand controls and an electric wheel chairhttp://kahovka-service.ru
June 12 will be 6 months since the diagnosis and it looks as though I will make it past that milestone. My next evaluation is in 3 months and the goal is to maintain weight (can you say Haagen Das ice cream ?)
I have no idea on what to do to slow down the deterioration but I am doing acupuncture for energy and centering of my chi as well as chiropractic and massage therapy for general well being.
I will be entering clinical trails starting in July unfortunately there is a 50% chance that I will be taking a placebo instead of the real thing. There is no way of getting around that issue.
I am currently partnering with the ALS Association in the fight against Lou Gehrig’s Disease. Although I am limited it my ability to move around, it is not stopping me from planning on my next adventure to Central America and countries # 82-83-84-& 85.