We are sad to let you know that our good friend Fred Noble passed from this world today.
An avid skier, traveler, sail boarder and adventure enthusiast, Fred often said he had “faced dozen of life and death moments through his life and he always thought he would die in some risky adventure.” When he was diagnosed with ALS, a terminal diagnosis with a prognosis of 2-4 years, Fred reframed his prediction and shared that “he now had the privilege of going on a farewell tour of undetermined length.” And “Oh, he was going to have some fun!”
Well, Fred had fun over the last years and he expressed his love to friends and family generously, but even more importantly he made a difference in our world.
Fred chose to turn his last years into a mission to make a difference for the cause of ALS. His efforts as the honorary chair of the Ski to Defeat ALS helped the event bring in over $480,000 in support of The ALS Association’s mission to provide supports for families living with ALS, while funding ALS research. To accomplish this Fred worked tirelessly to promote the Ski to Defeat ALS and to help other people facing the disease.
Out in the world, our “Most non-famous, famous man you would ever meet” was a force to be reckoned with. Everyone he met got a Fred Noble Adventure business card and ALS awareness bracelet. Oh, and then they also learned they would be supporting his fundraising efforts as well! Fred did not take no for an answer, ever. While is persistence enlisted lots of supporters, more importantly Fred gave a human and compassionate face that helped his friends, and our community understand what ALS is and how it affects real people in our community on a day-to-day basis.
Working with Fred to create resources for ALS services and ALS research has been an honor. But, we also learned you had to watch Fred closely. He had that unique skill to forge ahead and do his own thing and then ask permission later. Some might call that trait a “pain in the rear.” We preferred to call it “The Fred Noble experience!” Jump first, ask questions later and know you are doing well for others. You could not help but love Fred for his enthusiasm and his determination.
Every time we lose a person to ALS, a unique light in the firmament is extinguished. With Fred gone, the sky will have one less brilliant star shining forth. But, we take comfort for having witnessed the beauty of his life. While Fred’s light may be extinguished, our cause is now surrounded by the light of his family and friends who continue his good works. Where Fred’s light shone there are now dozens, hundreds, thousands of light that will continue to light the way until there is a cure for ALS.
That is a legacy to be proud of. Thank you Fred.
The ALS Association, Oregon & SW Washington Chapter